I finally have a hearing date, and am so excited to (hopefully) be done with this long process. I started applying for social security disability over a year ago. I have had to appeal twice, and finally had to request a hearing. There have been many times over the past year when I considered just giving up.
Unfortunately, so many people with chronic illness have to go through this process here in the United States. You would think over 3,000 pages of medical records for a 31-year-old is enough proof that something is wrong. Or that letters from friends, family, and doctors might be enough. Or maybe the number of conditions I have to deal with. But no, it's never enough.
Instead, over and over, I have had to explain my medical history to no less than 10 different people, whether it's someone at the social security office, or to get the type of health insurance that will allow me to keep seeing my numerous specialists, or to help prepare my attorneys so they can fight for me.
I have also learned some of the most valuable life lessons. For example, I can probably live on $100 for over a month. I don't have to pay rent, and have gotten help from family with my cell phone and car insurance bills. I can live on leftovers for days. I've learned how to be patient. I've learned that there are still people who will be there for you NO MATTER WHAT. Like my mom, who I am sure is totally exhausted from being my sole supporter. Or friends, who, while undergoing career changes, their own chronic illnesses, and other big life stressors, will still check in, read emails sent in the middle of the night, coach me through the process, and even write letters for the judge hearing my case.
I hope it will be over soon. If you need help starting the process for yourself, please let me know! I can help.